Peer Med Zebra is an initiative of the Peer Medical Foundation, advocating for rare disease intersectionality with a focus on health equity and genetics in caring for those with undiagnosed, invisible, ultra-rare and rare diseases.
Rare Diseases: Reconciling Uncertainty and Family; Leah Sarah Peer
“I feel empowered to take these lessons learned from the rare disease community and to apply them to broader compassionate care interactions; that of a partnership based on shared decision-making, not a list of directives for patients to follow.”
Let’s Reflect: 2nd Annual: RARE Health Equity Summit in Atlanta, GA
“Our Founder & CEO, Leah Sarah Peer was a Guest Speaker and Panelist on the “Experience Matters: The Importance of Rare Disease Education in Medicine” session. “
Advocating for rare disease intersectionality with a focus on health equity and genetics in caring for those with undiagnosed, invisible, ultra-rare and rare diseases.
A world where persons living with undiagnosed, invisible, ultra-rare and rare diseases and their families experience a better quality of life feeling heard and understood as they navigate the healthcare system.
At Peer Med Zebra, our work is guided by a set of core values (compassion, collaboration, equity and intersectionality) that shape our approach and drive our mission to advance rare disease education, promote health equity, and empower individuals affected by rare diseases.
- Educating healthcare professionals and students about rare diseases and the unique challenges faced by rare disease patients, particularly those from underserved communities.
- Advocating for policies and practices that promote health equity and improve access to care for rare disease patients.
- Supporting research efforts that seek to develop new treatments and cures for rare diseases, with a particular emphasis on diseases that disproportionately affect underserved communities.
- Providing resources and support to rare disease patients and their families, including access to information, peer support, and advocacy services.